Registered Charity Number: 1097765

The SMA Trust is a UK registered charity working to fund medical research into Spinal Muscular Atrophy. The ultimate goal is to find a cure, but equal emphasis is given to finding ways of alleviating the symptoms for those suffering from the disease. The Trust was set up in 2003 by the Knight family following the discovery that Ben Knight had Type III SMA.

Over £1.7 million has been raised for The SMA Trust over the past three years and is being used to support a number of research projects. The year 2007 marked the Trust’s first solo commission, providing nearly half a million pounds to a major research programme at Oxford University – (click here to read “About the SMA Trust”).

NEWSFLASH

The SMA Trust is pleased to announce its association with the Joint Call for Projects Under The Auspices of SMA Europe.  For more information about this exciting initiative, please read the news release.

The SMA Trust's trustees include:

Andrew Knight Chairman, with a specific responsibility for fund raising

Marita Crawley (Mrs Andrew Knight)

Sir James Gowans CBE FRS – the Trust’s Scientific Adviser

Casimir Knight (father of Ben Knight) Executive Trustee

Hugo Pickering (father of Harry Pickering, who died of SMA) is Communications Trustee

Karen Elder provides administrative support to the Trustees.