Fundraising Teams

We simply couldn’t do what we do without our amazing Fundraising Teams, who work so hard raising money and awareness on our behalf. You can support them in their efforts or you can set up a team of your own; just for one event or for several fundraising activities.

If you would like to set up a fundraising team contact Sarah at sarah@smatrust.org or call us on 01608 801020.

  • Team Abigail

    Amy, Danny and Joe, along with many friends and family, are fundraising in memory of their beautiful girl. Abigail was born on 8th April 2013 and diagnosed with SMA type 1 on 7th August 2013. Sadly Abigail lost her brave fight with SMA on 6th December 2013.
    Donate with JustGiving
  • Team Alex

    Mel and Tom are supporting the SMA Trust to help raise money and create awareness in memory of their gorgeous son. Alexander passed away at 7 months from SMA type1. His happy smiley self brought joy to everyone that knew him and his big blue eyes and huge smile will always live on in our hearts.
    Make a donation using Virgin Money Giving
  • Team Alexis

    Alexis Constantinou passed away from SMA type 1 in November 2015. He kept on smiling even when he was very weak and everyone around him adored him. His family and friends are now fundraising in his memory to support The SMA Trust to find a cure.
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  • TEAM DOINGIT4ALFIE

    Chelsea Leach and friends are raising funds for The SMA Trust in memory of Alfie Leach.
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  • Team Amber

    Hayley, Michael, friends and family are supporting The SMA Trust to hopefully find a cure one day soon. Amber Ivy was diagnosed with SMA 1 at just 7weeks old, she lived such a short but memorable life of just 4 months, they will never forget that infectious smile. She is sleeping with the angels and playing with the stars.
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  • Team Archie

    Archie is now 2 and was diagnosed with SMA Type 2 when he was 20 months old. He is an inspiration to the whole family, Archie decided to start fundraising for The SMA Trust not only to fight for a cure for Spinal Muscular Atrophy but to raise awareness about this rare condition that they had no idea about.
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  • Team Arthur

    Arthur William Granville was born on 30th December 2013. He was diagnosed with SMA Type 1 at 9 weeks. Team Arthur are raising money for The SMA Trust to fund important research into SMA>
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  • Team Benny

    Benny Knight and Family, forerunners to The MAD Challenge which was set up in 2010. Benny himself took part in the Athens challenge and was there to welcome the Celtic Crow Challengers upon their arrival at Pen y Fan.
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  • Team Caoilte

    Fiona Murphy (Caoilte's Mum), friends and family are raising funds and awareness for SMA. Caoilte was diagnosed at just 15 weeks old.
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  • Team Carli

    Carli Elford was born on the 24th May 2014 and 18 days later she was diagnosed with SMA Type 1. She lost her brave little battle on the 12th June 2014. She has her wings now, but we will do our best to fundraise for important research, so maybe one day there will be a cure.
    Donate with JustGiving
  • Team Cayson

    Cayson Harley James Mattis was born on 20th December 2015. At 13 days old he sadly passed away from SMA Type 1. Cayson’s Mummy Chanel, family and friends are fundraising in memory of their beautiful star boy to raise awareness of SMA and to help find a cure.
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  • Team Daniel

    Although Daniel was diagnosed at age 9 months with SMA type 1, he has done incredibly well and is now a very determined and strong-willed 11 year old looking forward to going to secondary school. Drug development is a world apart from what it was ten years ago. We have come a long way and we need a collective effort to make sure that the funds are there for the drug research, ensuring that when the cure is available, it will be available for all. That is why we are raising funds and awareness for The SMA Trust.
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  • TEAM DAVID

    Jonathan & Patricia Dee along with Team Captain, David Dee, continue to be amazing fundraisers. Team David hosted the glittering Platinum Ball in Manchester in October 2012, 2013 and 2014. They also organised a business breakfast with Matt Davies, CEO of Tesco (UK & ROI), in 2015.
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  • TEAM ELLIOT

    Louise & Simon Granger, family & friends continue to fundraise in memory of their baby Elliot. Team Elliot is based in Farnborough and other parts of the UK.
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  • Team Elliott Collins

    Elliott was diagnosed with SMA type 1 and very quickly became very poorly. He passed away just 4 weeks after diagnosis in December 2015, he was just 4 months old. Elliott gave his family joy every single day and now they will fundraise in his memory for a cure.
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  • TEAM ELSA

    Charlotte, Gareth & Olivia Mayor will be fundraising in memory of their baby daughter Elsa, who passed away at 9 months old from SMA. All of Elsa's family now plan to help raise money for The SMA Trust with the hope that one day a cure will be found.
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  • TEAM EMELIA

    Emelia was diagnosed just after her 2nd birthday with type 2 SMA and as a result we are collectively setting about raising money for The SMA Trust to continue to fund its research. We will be doing this through some sponsored events and also have a bit of fun along the way.
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  • TEAM FREDDIE

    The Sheffield Family, along with Team Captain Freddie Sheffield, have been fundraising since 2010. The family is based in Buckinghamshire and have supporters far and wide. Hosted events such as London to Paris Bike ride and the Coast to Coast event.
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  • Team George

    Liz Lockley, mum to George, along with her friends Nicola & Jennie are running the British 10k in July to raise money for the SMA Trust. One of her sons, George, was diagnosed with Spinal Muscular Atrophy (SMA) Type 2 shortly before his 1st birthday. Amongst other things, this means that George will never be able to walk. For more information please visit www.aboutgeorge.co.uk
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  • Team Harry

    Penny & Jason are raising money in memory of their precious little baby boy. Harry, who was born 10 weeks early in June 2015 was diagnosed with SMA type 1 in November and passed away just 3 days later. With help from friends & family, they want to raise funds to help find a cure so others won't have to go through the same pain of losing their loved ones.
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  • Team Heidi

    Heidi is 8 years old and has SMA type 3. She was diagnosed the day before her 4th birthday in 2011. She loves to sing, and act, and she has a great imagination. She is a very determined little girl! Myself and her stepfather, Andrew Prescott, want to help raise awareness and money for the SMA trust.
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  • Team Henry

    Henry is our inspiration for supporting The SMA Trust. Together, with friends and family in Suffolk and further afield, we aim to raise money and awareness for SMA.
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  • TEAM HOLLIE

    Hollie Flatman and parents Paula & Toby are raising awareness and funds for The SMA Trust, hosting a Ball in 2013 and 2014. The Flatman family is based in Dudley, West Midlands.
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  • Team Isabel

    Isabel is 2 years old and has SMA type 2. She has never been able to stand, walk or crawl but this won't stop her and her team to raise as much money as possible to support the SMA trust find a cure and treatment for SMA
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  • Team Jack

    On the 12th July 2017 our world was torn apart when Jack was diagnosed with SMA type 1 at just 6 weeks old. Our goal now is to enjoy every last minute we still have left with Jack but to also help raise as much money and awareness to help beat and cure this cruel disease.
    Donate with JustGiving
  • TEAM JAIDEN

    Shannon Wright and her mum Pauline are fundraising in memory of baby Jaiden Dale. They have huge support from family and friends mostly based in the North East of England. Shannon recently took part in The Great North Run.
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  • Team John

    Gemma and John are fundraising in memory of their precious little angel John. John sadly passed away at 7 and a half months from SMA Type 1 on 4th Sept 2016. Their little man brought so much pleasure, joy and happiness to everyone who knew him. His massive smile will live on in their hearts forever.
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  • Team Jude

    Jude Richardson’s family and friends fundraise in memory of the little boy their parents fondly called ‘Poop’. Whether it is doing something active, wearing something silly or eating lots of cake, his parents are always keen to be involved and are touched to see Poop’s legacy live on.
    Make a donation using Virgin Money Giving
  • Team Katie

    Katie O'Neill suffers from SMA type 1. She is such an inspiration to her family and friends in Northern Ireland. They would like to fundraise for The SMA Trust, to raise awareness of her condition and help find more treatments and one day a cure.
    Donate with JustGiving
  • Team Lauren

    Lauren Whelan, Mum Lisa Quinn and cousin Keith Coleman are raising awareness and funds for the SMA Trust. Lauren has Type 3 and has had to retire from Irish Dancing at the age of 10 years due to SMA. Lauren's family are based in Ireland, Dublin. You can visit their page here: Donate with JustGiving
  • Team Layla

    Layla Violet was born on the 28 March 2014, a beautiful little girl and daughter to Sophie and Rob. Sadly, some weeks later she was diagnosed with SMA Type 1.
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  • TEAM LILY-BEA

    Hannah & David Razzell head up Team Lily-Bea, fundraising since 2012 in memory of their little girl Lily Beatrice Razzell. They are based in Essex with friends and family helping to raise funds and awareness.
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  • Team Lottie

    We nearly lost our little Lottie at 8 months but Charlotte fought through to stay with us for almost 18 months. With other children since affected, Team Lottie is getting together to raise funds for The SMA Trust - it seems only a matter of time and funding before a cure is found for this cruel disease.
    Donate with JustGiving
  • Team Lucas

    Jenny Hannigan and her family are fundraising in memory of her darling little boy, Lucas. Lucas was born on 4th August 2008 and on 17th October of that year, he was diagnosed with SMA Type 1.

    To read Lucas’ story, please follow this link: http://www.trickortreatball.co.uk/lucasStory.pdf

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  • TEAM MARNI

    Marni Smyth leads her own team and she is based in Yorkshire.
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  • Team Martha

    Beth and Jon, along with family and friends, are fundraising in memory of their daughter Martha Cook who passed away from SMA type 1 in September 2015. Her condition didn't stop Martha from enjoying many adventures in her 6 months. Her smiles will live on in the hearts of those who met her and fundraising for The SMA Trust in her memory will help many other families and children in the future.
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  • TEAM MILLIE

    The Hawes family and Team Leader Millie Hawes continue to fundraise for The SMA Trust. Millie took part in her own MAD challenge –Miles without Stiles in the Lake District. Millie is based in Cheshire with strong family links in London, Tunbridge Wells and Surrey.
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  • TEAM OCTAVIA

    Octavia Woodward, Team leader, who was one of the former Team leaders who began the MAD Challenge in 2010, took her pony Diddy along with his carriage, from home in Somerset all the way to Windsor to then take part in the Royal Windsor Horse show. Octavia’s family and friends from Somerset to London, Surrey to Dorset and beyond have taken part in some of the craziest MAD Challenges to date.
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  • Team Oli

    Oli, his family and friends have joined together to raise money for The SMA Trust. Oli is 7 and has SMA Type 2 and can’t walk. He is the most determined, happy and loving boy who strives daily to overcome the constraints of SMA. Oli’s dream is to walk. If you ask what he would like to do most, he would say run around kicking a football with his family and friends. We are supporting The SMA Trust in hope that one day they will find a cure or treatment for SMA.
    Donate with JustGiving
  • Team Oscar

    Rachel, Jason, Jack & Archie as well as their family & friends, are fundraising in memory of their sweet baby boy. Oscar lost his fight in July 2013, aged just 9 weeks. They hope to raise as much money and awareness as possible.
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  • Team Rowan

    Matt & Sarah Poole, fundraise in memory of their baby daughter Rowan. Based in Huddersfield, West Yorkshire, they have huge support from family and friends from Dublin, Devon, London and West Yorkshire. Team Rowan organised their own Onesie walk in May 2013 and friends have taken part in The Three Peaks challenge, several half marathons and 20-20 Cricket to name but a few of their MAD Challenges.
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  • Team Ruby's Racers

    Working in partnership with The London Haringey Racers, Ruby’s racers are on a mission to raise as much money as possible for The SMA Trust so that one day, no more parents have to suffer the loss of a child. Ruby passed away from SMA type 1 in 2015 at just 4 months and 1 day old. For information on their fundraising events make sure you follow them on twitter @londonracers
    Donate with JustGiving
  • Team SMAshers - Anna Brooks

    Anna Brooks heads up Team SMAshers. Read Anna's SMA story on our SMA Stories web page.
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  • TEAM TIEGAN

    Hannah McKeown and family are raising funds for The SMA trust. Hannah is also helping with the Flatman's Ball as she and Tiegan are great friends of the Flatmans and are also based in Dudley.
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  • Team Travis

    Team Travis is led by Lucy and Shane, parents to Travis who sadly lost his fight with SMA aged 7 months in October 2013. Based in Wales the Keseru’s family and friends kicked off their fundraising with a walk up Pen Y fan last year.