SMA Europe held its bi-annual meeting in Berlin over 13th and 14th October 2017, kindly hosted by Initiative SMA, an initiative of the German neuromuscular organisation, Deutsche Gesellschaft für Muskelkranke (DGM). As a member country, The SMA Trust was present to represent the UK, along with SMA Support UK.
A number of topics were discussed, from the availability and scope of Spinraza™ reimbursement across different European countries, to SMA Europe’s International Scientific Congress for SMA and patient advocacy initiatives. Representatives of Avexis, Biogen, Novartis and Roche were also present to discuss their respective clinical trials and the role SMA Europe can play to ensure their successful delivery across its member countries.
In addition, SMA Europe was delighted to formally welcome our newest members, Asociatia SMA Care from Romania, represented by Claudia Dumitru, FSMA á Íslandi from Iceland, represented by Ásthildur Guðmundsdóttir and SMA Family Foundation Russia, represented by Olga Germanenko.