From time to time we are made aware of petitions and campaigns underway that may affect families of those with SMA or individuals living with SMA.
Please note that us posting links to these petitions does not necessarily mean we agree with their purpose. We feel strongly that our SMA community may well want to be made aware of them, and after careful consideration decide which ones they may want to support/sign.
If you do respond, we ask you to be clear that you are speaking personally and not on behalf of The SMA Trust.
Here’s a list of the ones we are currently aware of that you may choose to support:
- SMA Fight for Life – Petitioning the European Medicines Agency (EMA)
- Make Nusinersen available to terminally ill children with Spinal Muscular Atrophy in the UK
- Join us in the campaign for access to Spinraza™ in the UK!