The SMA Trust is the only UK charity solely dedicated to funding research into a cure and treatments for SMA and currently funds over 75% of UK charity funded research. Since being founded in 2003, The SMA Trust has committed over £4 million in SMA research projects worldwide.
Our SMA research projects are focused on furthering the understanding of the disease, finding potential treatments and developing UK centres of excellence that attract world-class scientists to SMA research. Our research is carried out in the UK, continental Europe and the US.
We fund many different initiatives but our current priorities lie in 3 main areas:
- In January 2016 the first UK SMA Research Consortium was launched, which The SMA Trust is funding at a cost of £1.3m over the 3 years. The consortium is an important collaboration, consisting of world-class research/clinical experts which is focused on learning more about SMA and how we can help develop successful treatments for people affected by all SMA types throughout their lives.
- The SMA Trust also funds a clinical project, SMA REACH, collating consistent, up to date patient information with the ultimate aim of facilitating successful clinical trials in the UK as well as raising the standards of care.
- We forge partnerships with research and patient advocacy organisations internationally through our membership of SMA Europe. SMA Europe is an umbrella organisation that funds research projects across Europe and globally, as well as promoting knowledge-sharing, collaboration and representation of a united ‘patient voice’ to pharmaceutical companies and regulatory authorities involved in clinical trials.